The Kansas Association of Centers for Independent Living (KACIL) is pleased to announce that it received one of seven national Quality of Life grants from the Christopher and Dana Reeve Foundation. Funds will be used to transition people with paralysis living in nursing homes back into their homes or a community-based setting of their choice.

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Jim H., is a person with a disability, one of the over 3,500 Kansans on the waiting list for Home and Community Based Services. Jim has Huntington’s Disease. Because Huntington’s is a progressive disease, it is getting more and more difficult for Jim to accomplish his daily activities, including cleaning and cooking for himself.

The disease has also led to an increase in falls, which can be extremely dangerous, in fact, falls are one of the leading causes of death in individuals with Huntington’s disease.

Jim was unable to get a “crisis exception” from SRS to be eligible for in home services without waiting on an over 3-year long waiting list. ┬áThis video is Jim sharing his story, he talks about the minimum assistance that he needs to remain safely in his home. It is a travesty that in order to access necessary supports, Jim must go into a nursing facility or go without any services and endanger his life.