Check out State Independent Living Council of Kansas’ annual report below.

SILCK Annual Report (PDF)

SILCK Annual Report (text only)

For questions or more information contact Kathy Cooper (785) 234-6990 or Kathy.cooper@silck.org

The Statewide Independent Living Council of Kansas, Inc. will be hosting a public comment forum over the State Plan for Independent Living(SPIL) for FFY 2017 to FFY 2019 on March 30th from 10am to 12pm. This is an opportunity to gather input, share comments and ask questions on the proposed  SPIL.  The forum will be webcast using interactive technology to connect people in 13 communities throughout Kansas.
The webcast will originate from the conference room on the 2nd floor of the Tower at the SILCK office located at the Downtown Ramada, 420 SE 6th Ave., Topeka, KS 66607.
The public may also attend the interactive webcast at any of the following locations:

Concordia
OCCK
1502 Lincoln St
Concordia, KS 66901 

Emporia
Resource Center for Independent Living
215 W. Sixth Ave., Suite 202
Emporia, KS 66801

Garden City
Families Together, Inc.
1518 Taylor Plaza
Garden City, KS 67846 

Hays
LINK
2401 E. 13th St
Hays, KS 67601 

Hutchinson
Prairie Independent Living Resource Center
17 S. Main St.
Hutchinson, KS 67501 

Kansas City
Coalition For Independence
626 Minnesota
Kansas City, KS 66101 

Lawrence
Independence Inc.
2001 Haskell Ave.
Lawrence, KS 66046 

Osage City
Resource Center for Independent Living
1137 Laing St.
Osage City, KS 66523 

Parsons
Southeast Kansas Independent Living
1801 Main
Parsons, KS 67357 

Salina
Independent Connection
1710 Schilling Rd
Salina, KS 67401 

Topeka
Topeka Independent Living Resource Center
501 SW Jackson, Suite 100
Topeka, KS 66603 

Wamego
Three Rivers
504 Miller Drive
Wamego, KS 66547 

Wichita
Independent Living Resource Center
3033 W. 2nd St
Wichita, KS 67203

The proposed State Plan for Independent Living will be available for review effective 2/22/16 at: http://silck.org/wp-content/uploads/2016/02/DRAFT-2-2017-19-SPIL.docx

Individuals who wish to submit comments in writing may do so no later than 4/21/16, using the following email address:  Kathy.Cooper@silck.org

For more information or to request accommodations, please contact Kathy Cooper, SILCK Executive Director at

785-234-6990 or email at Kathy.Cooper@silck.org  no later than noon 3/16/16.  All sites are accessible locations.

 

 

The Statewide Independent Living Council of Kansas (SILCK) and the Centers for Independent Living in Kansas are holding stakeholder forums in 5 cities across Kansas to gain information on goals and issues regarding Independent Living for Kansans with disabilities.  The SILCK and the CILs plan to use this “grassroots” input to help write the next State Plan for Independent Living (SPIL).  Independent living demands consumer empowerment, control, equal access, and integration.  We hope that by hearing from the people first, we can better reflect what the needs are of people with disabilities and come up with an effective plan to truly make Kansas an inclusive community. 

Please join us for open discussion at one of the following events:

Thursday, October 29th, 2015  10am to 12pm
Victory Electric, Hampton room
3230 N. 14th Ave.
Dodge City, KS 67801
*Accessible parking on the South side, everyone else please park on the North side.

Wednesday, November 4th, 2015  10am to 12pm
USD 409 Atchison Public School District Office, Community Room
626 Commercial
Atchison, KS 66002

Monday, November 9th, 2015  10am to 12pm
Colby Public Library, basement conference room
375 W 4th St
Colby, KS 67701

Thursday, November 12th, 2015  10am to 12pm
Chanute Recreation Commission, Party Room
400 S. Highland
Chanute, KS 66720

Friday, November 6th, 2015  10am to 12pm
OCCK Transportation Building
340 N. Santa Fe
Salina, KS 64701

Please contact Kathy Cooper at kathy.cooper@silck.org or 785-234-6990 for any accommodations by 11/5/15.

 

The Kansas Department on Aging and Disability Services (KDADS) is preparing to submit the paperwork necessary to renew the waivers that guide HCBS in Kansas.  The draft includes changes to the existing services.  Consumers are encouraged to read the information that KDADS is going to submit to the Centers for Medicare/Medicaid and provide feedback. 

The draft renewals, which include the Transition Plan for Home and Community-Based Services (HCBS) Settings and proposed changes for each HCBS Program’s renewal are available online at www.KDADS.ks.gov for public comment until December 10, 2014. The Public Comment period allows all consumers and providers of the follow programs: Frail Elderly, Intellectual/Developmental Disability, Physical Disability and Traumatic Brain Injury.  

Additionally, KDADS has provided a summary of the proposed changes. Only the areas of proposed changes identified in the summary document are available for public comment. New documents with helpful information about the transition plan have been posted online as well.

You may access the documents three ways:

Online: www.KDADS.ks.gov – on the home page

In Person: At your local Community Developmental Disability Organization (CDDO), Aging and Disability Resource Center (ADRC) or Center for Independent Living (CIL).

By Email: HCBS-KS@kdads.ks.gov – Please notify us if you need an accommodation

Questions and Answers are made available online and shared through appropriate public sessions, conference calls, listservs and bulletins during the comment period. A summary of responses will available online after the public comment period has ended for the renewals or any changes to them, and the summary of responses will be provided to CMS as part of the renewal submission.

Comments and Public Input on a Transition Plan can be submitted to KDADS during the comment period the following ways:

By Phone: 785-296-4986 or 785-296-3473
By Email: HCBS-KS@kdads.ks.govSubject: HCBS Renewals Public Comments
By Mail: KDADS, Attn: HCBS Programs, 503 S. Kansas Ave, Topeka, KS 66603.
By Fax: 785-296-0256, Attn: HCBS Programs

 

Due to home and community based services, Ross is able to live at his own home. Watch this video as he tells his own story.

 

 

Please watch the video to find out about Heidi’s story.  Being at home is important and so are home and community based services!

Please ready Elise’s story of independence through using home and community based services.

My name is Elise, I suffer from Diabetes, Fibromyalgia, Spinal stenosis, Bile duct reconstruction, Parkinson’s disease, depression, and anxiety.  I also just had open heart surgery. I live with my husband Bill Fears who suffers from Alzheimer’s disease and Parkinson’s disease. I have a son who lives here in Ottawa and a daughter in Tulsa. I moved to Ottawa from Illinois to be closer to my son.

I am on the Physical Disability waiver. I have a direct service worker who comes into my home to help care for me. My DSW (Direct Service Worker) cleans the house, does laundry, cooks, runs errands, helps me with bathing, and is a real support system for me. It would be very hard if not impossible for me to get things done around the house without my DSW. Some days with the fibromyalgia I can’t get out of bed. My DSW also helps when the depression and anxiety gets bad. If I did not have a DSW Bill and I would most likely be in a nursing home.

 I took advantage of the Peer Specialist Program at RCIL. I worked with Peer Specialist Rebecca at the Ottawa RCIL office, I created an Independent Living Plan that helped me figure out what to do about my vehicle that I was having mechanical problems with. It went very well working with Rebecca & I feel it was a success. I would use the Peer Specialist Program again & I would recommend it to my friends.

I am thankful that RCIL is there to help me, RCIL helps me stay at home, and RCIL helps me stay living independently. Taking away Centers for Independent Living in Kansas would hurt the people who need them the most. I certainly could not keep my husband at home with me if it were not for my DSW and RCIL. If I could tell the legislators something it would be this. Please keep Centers for Independent Living budgeted. So we, who need them, can stay Independent & stay in our communities. We don’t want institutionalization & I REFUSE to live in a nursing home. I don’t want to be confined, I don’t want to be told what I can or can’t do, I am not a 66 year old child, I am a 66 year old grown woman, and I would like to be treated as such!

This is Elise’s story, if you would like to share your story of independence, please email it to mandy.smith@rcilinc.org.

The House & Senate conference committee for the FY 2013 budget have held four rounds of negotiations thus far. Next round is scheduled for 1:30 this afternoon.

Senate negotiators (Carolyn McGinn, John Vratil & Laura Kelly) have held firm on two items that are crucial to the disability community. Please take a moment and email them our thanks and encouragement for their continued support.

The 2 issues at stake currently are:

  1. Add $1.2M (All Funds) to the Home and Community Based Services/Physically Disabled waiver to fund an additional 60 individuals to meet maintenance of effort requirements for the Affordable Care Act.
  2. Add $350,000 (State General Funds) for grant funding of Centers for Independent Living

House negotiators (Marc Rhoades, Kasha Kelley, & Bill Feuerborn) do not appear willing to fund either of these items. Please take a moment and email each of these folks. You can use the KACIL Legislative Handout for talking points.

We need to make sure they understand:

  • The importance of HCBS in maintaining dignity and independence, as well as it being a fiscally sound service delivery method.
  • The vital role that Centers for Independent Living serve in the Kansas disability community.
  • The toll that budget cuts have taken already on CILs and HCBS. (For example, downsizing staff and programs, waiting lists)


The Legislative Session has passed the halfway mark and our advocacy efforts are ramping up. There are so many big concerns for the disability community this time around and it is imperative that we get input to the Administration, the Legislators, and to our communities from Kansans with disabilities.

The Resource Center for Independent Living, is working to get as many consumer stories, pictures, and videos as possible. We are trying to find innovative ways to make a visible stand for the needs of the disability community.

Yesterday, we released a video regarding allegations from members of the Legislature that Centers for Independent Living are full of fraud. We know that isn’t the case so we wanted to create a way to simply share a powerful message, Centers for Independent Living are not Fraud. Check it out if you haven’t seen it. So, what can you do?

If you are a member of the Kansas disability community, this includes families and loved ones of persons with a disability and those who work or advocate within this community, we need to hear from you! There are a couple of different ways to share your story.

  1. Submit a digital photo of yourself holding the “I’m Not Fraud” sign – You must print off the sign and the Photo Release form we need to use your photo. Take the picture, fill out the form, and scan/email it to Summer Ludwig.
  2. Have someone video a short, 2-3 minute clip of your story and upload it to YouTube and send us the link or send us the video and the Photo Release and we can upload it to our page.
  3. Contact your local RCIL office or email Summer Ludwig and let us know that you would like our assistance in getting either your photo, video or both! We will have someone come to you.

If you decide to make a video the following are some ideas of questions to have someone ask you and you answer or topics you can just talk about. These are just suggestions, you can use them or not use them, the important thing is getting YOUR voice to the Administration and the Legislators.

Script ideas/questions for people on the Waiting List
  1. How long have you been waiting?
  2. Please describe your disability/situation.
  3. How is your life impacted by not receiving services?
  4. What types of assistance do you need?
  5. You are eligible to enter a NF, is that an option for you? Why/Why not?
  6. What would you like to say to your Legislators?
Script ideas/questions for people receiving services
  1. Please describe your disability/situation.
  2. What type of assistance do you receive in your home?
  3. What would your life be like without these services?
  4. Have you used CIL services other than HCBS? If so, how did this help you?
  5. What would you like to say to your Legislators?

For other ways to Advocate make sure you check out our Advocacy page.

From now through March 6th, we need the disability community to contact each member of the House Appropriations Committee. A complete list of names and contact information is available here.

They will begin debating the budget on March 6th. As they are working on budget issues we need to make sure they know the importance of funding the Home and Community Based services Physically Disabled waiting list and to restore the Financial Management Services(FMS) rate back to $140.

Shannon Jones assembled the following handouts to use in making your contacts with the Legislators.

Some of the talking points for funding the waiting list are:

  • As of February 1, 2012 there are 3,433 persons waiting for HCBS/PD services.
  • 30 persons died while waiting during the month of Jan. 2012
  • 10 persons entered a nursing facility during the month of Jan. 2012.
  • The last person offered PD Services had been waiting for 3 years!
  • Since 2010, 1,200 persons have come off of the PD Waiver, yet no one is coming off the waiting list.
  • Approximately $33 million (State funds) would fund HCBS waiver services for those waiting.

Some of the talking points for increasing the FMS rate are:

  • Last fall, Providers were notified of the $115 reduced rate with no justification and no opportunity for discussion.
  • Providers are asking for a fair rate for services delivered.
  • CILs anticipate additional layoffs associated with the FMS, which will amount to roughly a 25% reduction in agency staffing, the majority of which are people with disabilities.

Once you have made contact with each Legislator on the House Social Services Budget Committee, please email me any responses that you receive so we can track and amend our message as needed.