ADA 30: Nothing About Us Without Us

Categorized: Advocacy, Consumer Education, Independent Living

A Virtual Celebration with Judith Heumann

Judith Heumann, internationally recognized disability rights leader and activist, will celebrate the 30th anniversary of the Americans with Disabilities Act (ADA) and October’s National Disability Employment Awareness Month virtually with the University of Kansas and the Lawrence communities and guests worldwide on October 28-29, 2020.

Heumann’s visit is organized by the KU ADA Resource Center for Equity and Accessibility. All events are free, and the majority are open to the public. See the full schedule here 

The ECKAN Weatherization Assistance Program is accepting applications for individuals in Allen, Anderson, Bourbon, Chase, Coffey, Douglas, Franklin, Greenwood, Johnson, Linn, Lyon, Miami, Morris, Osage, Woodson and Wyandotte counties.

Eligible individuals include home owners and renters that meet household income levels. If anyone in the household receives one or more of the following sources of income they will be automatically qualified for the program.

  • Supplemental Security Income (SSI)
  • Temporary Assistance for Needy Families (TANF)
  • Utility assistance from the Low-Income Energy Assistance Program (LIEAP)

To apply or learn more information about the program, contact ECKAN at 785-242-6413 or visit their website at http://www.eckan.org/weatherization/.

The Kansas Disability and Health Program with The University of Kansas Institute for Health and Disability Policy Studies developed a fact sheet called “Kansans with Disabilities: Transportation Barriers = Health Barriers.” The fact sheet identified the transportation barriers along with possible solutions to remove those barriers for people with disabilities. They also listed several personal experiences that they received from people with disabilities. Here are a few experiences from the fact sheet:

  • “A van with a wheelchair lift costs $30,000 to $40,000 more than a typical van, way over the budget of most people with disabilities.”
  • “When the paratransit is late then people miss their appointments, or they are late and this does not sit well with medical providers.”
  • “Transportation outside of the area where people live is not available. If someone needs to see a specialist in another town/city, it is difficult if not close to impossible to get there.”

Click on the fact sheet here for details about the transportation barriers. This fact sheet is also on the Kansas Disability and Health Program website at https://ihdps.ku.edu/dhp-resources.

For more information, contact Kim Bruns, Disabilities and Health Program Coordinator, at 785-864-1561 or kbruns@ku.edu.

Do you have a mobility – related disability? Looking to lose weight?

We are offering a research weight management program that provides:

  • diet plan
  • physical activity
  • social interaction without leaving your home!

All participants must be over the age of 18 and willing to:

  • Being randomized to either individual home visits or group participation via video conferencing
  • Track food and beverage intake
  • Participate in physical activity according to randomization

Participants will learn behavioral strategies from a trained health educator.
Participants will receive compensation for their participation in the study.  No travel is required.

For more information contact:
Trish Smith at mighty@ku.edu or call 785-764-1312 or visit www.ebl.ku.edu/mighty.

Individuals must live within 50 miles of Kansas City or Lawrence.
This program is 18 months and takes place in the home.

MIGHTY Flyer

Do you have an issue or a goal that you need some assistance to achieve? Perhaps you can’t afford that piece of medical equipment you need? Is your goal is to make a cake, learn how to budget, or find a job? RCIL’s Independent Living Specialists work with people with disabilities to help them resolve their issues or achieve goals by developing an independent living plan (ILP). The ILP involves individuals identifying their goal and steps to take to achieve that goal.

Why should you develop a plan? Having a plan written down with a set date for accomplishment can gives you something to plan and work towards. It can also help you to stay focused, motivated, and it can be a constant reminder of what you need to accomplish. When the plan is accomplished, it can build your self-confidence as you recognize your own ability and competence in achieving the goals that you have set.

How do you develop a plan? First you will need to identify your number one issue or a goal you want to achieve. Then write your SMART goal on paper. SMART stands for: Specific, Measurable, Attainable, Realistic, and Time Oriented. For example, instead of saying “find a new place to live” as a goal, use SMART goal to make it more powerful such as “I want to live in an apartment within walking distance to a grocery store by March 31, 2020.” When a SMART goal is written, list all of the steps you need to take along with target dates to complete them. Next, make a list of things that may interfere with your plan and how to overcome those barriers. When your plan is developed, place it where you will see it daily as a reminder and motivation. You can share your plan with your family and friends who will give you support and assist you when needed. They can also help your accountability to follow through with your plan.

What should you do when you accomplish your goal? When you have achieved your goal, take the time to enjoy and celebrate what you have accomplished!

If you are a person with a disability and need assistance to achieve your goal, contact RCIL at 1-800-580-7245 and an Independent Living Specialist will assist you.

Researchers from The University of Michigan are asking women 18-50 years old with physical disabilities to take part in surveys about their experiences related to women’s health issues.

Surveys can be done from home and compensation is available. The amount you receive will depend on the number of surveys you are eligible to complete.

See the flyer here. If you are interested or want more information, contact The University of Michigan at 734-763-9374 or email at prowhd-surveys@umich.edu.

The Kansas Disability Caucus, Inc. Board has five positions up for election each beginning January 1, 2020 for a two year term. They are seeking individuals who want to join the group to organize and coordinate activities that promote independent living of all people with disabilities through collaboration, networking, education, planning, and peer-to-peer interaction, including the Disability Caucus held during even numbered years. The Kansas Disability Caucus supports and encourages successful outcomes for people with all types of disabilities of all ages, especially encouraging the involvement of young adults.

For more information or if you would like to apply, view the application here. The deadline to submit the application is December 1, 2019.

Do you have a mobility – related disability and are looking to lose weight?  You may be eligible for the University of Kansas Medical Center Research Study.

This weight management program provides diet guidance, physical activity and social interaction without leaving your home!

All participants must be over the age of 18 with a mobility related disability, and open to:

  1. Being randomized to either individual home visits or group participation via video conferencing
  2. Recording food and beverage intake, and participate in physical activity eithter self monitored or via group video

Participants will learn behavioral strategies from a trained health educator with compensation for their participation in the study.  No travel required.

This program is 18 months and takes place in the home.  Individuals must live within 50 miles of Kansas City or Lawrence.

For more information contact Trish Smith at mighty@ku.edu or call 785-764-1312 or visit www.ebl.ku.edu/mighty.

Mobility Impaired Get Healthy Together (MIGHTY) flyer

 

 

 

The 2019 Medicare Annual Enrollment Period is October 15th to December 7th.  Medicare Part D is known as Prescription Drug Plan.  Individuals who have Medicare Part D can explore, compare drug plan options, and choose a plan that will meet their needs during annual enrollment.  The plan they choose will go into effect on January 1, 2020.

Contact RCIL at 1-800-580-7245 if you need assistance to enroll in Medicare Part D or change your coverage plans.

Please join us for an informative session on Self-Directing your Home and Community Based Services. Topics will include information on:

  • How to Recruit, Select, Interview, Hire, Train, Supervise and Dismiss Direct Support Workers (DSWs)
  • Understanding Enhanced Care Services (Sleep Cycle Support)
  • KS AuthentiCare (the Electronic Visit Verification Call In System)
  • Having a Backup Plan (of DSWs)
  • Medicaid Fraud
  • Abuse, Neglect and Exploitation

Snacks Provided
Drawings will be held for prizes!
Friday, October 11, 2019
1:00 pm – 2:00 pm
Bourbon County Senior Center
26 N Main St, Fort Scott

Space is limited! Please call Mandy Kline or Becky Brewer at 1-800-580-7245 to reserve your spot!